Thanks to the Good Friday Appeal, The Royal Children’s Hospital (RCH) and the Murdoch Children’s Research Institute (MCRI) are coming together to undertake research to provide clinicians with guidance and evidence-based information on how to best deliver telehealth developmental assessments.

Patients accessing healthcare via telehealth appointments have increased following the COVID-19 pandemic.

It is vital children and young people with complex neurodevelopmental needs are given accurate and timely diagnoses and appropriate plans to manage their symptoms. This funding will ensure the quality and accuracy of assessments, so patients receive the best possible care.

For most children, the gift of learning, communicating with others, developing friendships, and engaging in day-to-day activities comes naturally. Yet for many children with a developmental disability, this is not the case.

Effective diagnosis and treatment plans for developmental disabilities traditionally rely on a series of in-person assessments that look at social and communication skills, speech and language abilities, and behaviour and brain function. Clinicians have shifted parts of these assessments to telehealth to treat vulnerable or disadvantaged patients.

Currently, the reliability of telehealth developmental assessments is not known. This makes a study in the area crucial in preventing incorrect diagnoses, unsafe clinical practices, and substandard clinical outcomes.

The Royal Children’s Hospital (RCH) and the Murdoch Children’s Research Institute (MCRI) are working together to develop evidence-based telehealth assessments.

The study will provide clinicians with guidance and guidelines on how to deliver high-quality telehealth assessments. This will result in positive health outcomes across the fields of neuropsychology, clinical psychology, developmental paediatrics and speech pathology.

The outcome of this study will be published in journals, discussed at national and international conferences, and shared in workshops to allow clinicians globally to deliver greater care and provide best practices.

This research can lead to high-quality telehealth-delivered assessments. It can also increase access to accurate assessments for vulnerable patients, such as those with immune deficiency, reduced mobility, mental health and neurodevelopmental problems, and those in regional or rural areas.

In 2024, the project team focused on the groundwork. This includes ongoing consultations with RCH staff to ensure the success of the project, creating recruitment and workflow protocols, obtaining preliminary data and establishing assessment protocols.  

As of January 2025, the team’s protocols have been fully optimised, and recruitment has commenced—setting the stage for an active and productive year ahead. 

“Thanks to the Good Friday Appeal, we will be able to create a new level and higher standard of care for neurodevelopmental assessments delivered via telehealth. This has the potential to remove barriers and ensure more accurate and timely diagnoses and clinical results, helping change children and young people’s lives.”

Associate Professor Jonathan Payne, Principal Research Fellow at the Murdoch Children’s Research Institute 

Impact Milestones

2024

• Actively collaborated with RCH clinical leads to align the study protocols with the needs and demands of clinical practice. This is important so the methods the team are aiming to validate will be feasible for RCH clinicians to put into everyday practice. 
• Results of the consultation have guided detailed assessment protocols and the procedural manual for the study so that telehealth assessments will be readily implementable into daily clinical practice. 
• Recruitment strategies and workflows have been created. 
• Preliminary data from all study arms have been obtained and are proving very valuable: 
• In the neuropsychology arm, the methods we are using for telehealth assessment of learning challenges and intellectual ability appear to be produce accurate results and have been acceptable to clinicians and families. 
• In the autism arm, preliminary assessments revealed that our adapted telehealth procedure, based on current best practices, required a minor modification to gather additional information from the child. This adjustment ensures the assessment process is more comprehensive and clinically meaningful.