We would love to hear your story or a story of someone you know whose life has been touched by The Royal Children’s Hospital. You may be a patient, staff member, family member or friend of a patient. You may be a fundraiser sharing how your community is getting involved.
Scroll through the stories to hear what The Royal Children’s Hospital means to people from all over Australia.
Our darling Stella was born 2nd December 2016 at 27 weeks and 1 day weighing 985grams. she was doing very well until the 2 week mark when I (Mummy) found blood in her stools. As soon as I mentioned this the Drs at The Royal Womens Hospital knew what was to come. That night we received a call within hours to say to come in as our girl ia extremely unwell. When we came in Stella's tummy was black and distended. She had the awful infection. Babies can get very unwell very quick. Unfortunately Stella got so sick we were prepared to say our good byes... no medication was working for her. The next day she got so unwell she was seen by surgeon Liz McCleod at RCH at RWH. She was transported to the RCH that day. 6am the next day we were told they were operating on Stella in her room as she was so sick and not getting better. Again we prepared for the worst and held her hand and said good bye. Stella had her surgery and pulled through. We were taken into a room and told she had lost 70cm of bowel and was left with roughly 50cm. Loosing over half of her small bowel which did not look good for her. The surgeon said she don't know what the future would hold and if she could lead a normal life. again, we feared the worst but i knew as her mummy I had a fighter on board. Stella now had a stoma which meant she would poo through her bowel through her tummy. we held her hand, I sung and read to her most hours of the day. I knew she could do this. Stella was on a very high form of life support and heavily sedated. Our heart broke. Within days Stella was fed my milk through a tube and started tolerating milk well to our surprise we were told it was a very long road ahead and we were always told to take one day at a time which we did. Within a break Stella was taken around from NICU to HDU. Massive step, her lungs were pretty good which was a huge bonus. Stella was also on TPN (nutrition through an intervene needle) so she can put on weight to grow. We were kicking goals to everyone's surprise. Months passed and it was decided that Stella was healthy and strong enough to get her stoma reversed and hopefully they could join the bowel together internally and sew her together and finally poo properly. Surgery was booked and Stella went under again! The surgery was a success! Luckily for us no more bowel was removed as Stella couldn't afford for that to happen and fingers crossed we are informed the bowel can grow and adapt in young children. Stella was back in NICU and recovering when things took a turn for the worse. We were never prepared for what came next. Stella was in so much pain from her operation she was jumping in her bed which was very confronting for my husband and I. Our poor baby was in agony. They upped her pain medication and upped her oxygen but something wasn't makings sense. My poor baby was on 80% oxygen the highest she could go and she has never needed that much even when she was born and she was still struggling. A scan was ordered and her lung started to collapse. What next... all of the sudden Stella did not tolerate the nurses move her and stopped breathing. I could see the fear in the nurse and they couldn't get Stella breathing so they slammed the emergency button on her and everyone came running hubby and I were ushered outside as they worked on Stella. All I remember was seeing her turn blue. I was hysterical I thought she was dead! I've never seen my husband so scared. Luckily they managed to get Stella in a controllable state. Stella got better from then and started on milk through a tube. The wait for a poo was the anxious wait. Day 3 we had a poo and it was music to our ears. Success. Our girl can poo normally, feeds kept increasing and tolerated well. Our champ was on full feeds so TPN was taken off and she was fed through a tube and also a few breastfeed a day. The tube eventually came out and Stella was receiving feeds all by mouth. All the lines were taken out and our rainbow miracle made it to the other side. I never doubted her but golly gosh what hell not even a full term bubba has gone through . What a gem, a superstar, a strong little lady. Home time came around and here we are 4 weeks later enjoying life as a family of 4. We couldn't thank the RCH enough which includes the support and help of all the wonderful nurses, doctors, social workers, surgeons, volunteers, food staff, Ronald Mcdonald house and finally the starlight room. You made not only our scary journey that little bit more easier but you made our eldest daughter (Stella big sister Ava) stay and visits daily pleasurable. You are all amazing and made Stellas life possible. we are still part of the RCH with clinic appointments and will forever be grateful. Keep up the great work. A part of our hearts will forever be there. Thank you. Love the Sendeckys.
We would love to hear your story or a story of someone you know whose life has been touched by The Royal Children’s Hospital.
You may be a patient, staff member, family member or friend of a patient. You may be a fundraiser sharing how your community is getting involved.
If you have a story to share, please fill in the form below and the Good Friday Appeal will be in touch.